Topic: spinal muscular atrophy
Parents to run marathon in honour of sick child
Dan Fitzgerald will be running the marathon, along his wife Brooke, to raise awareness about spinal muscular atrophy, the devastating medical condition their baby Violet was born with.
Following baby Violet’s plight, newborns to be tested for spinal muscular atrophy
Health officials have confirmed that Cayman will begin screening newborns for spinal muscular atrophy, just over a week after 11-week-old Violet Fitzgerald who has the potentially deadly condition, received a $2.2 million drug to halt its progress.
Baby Violet receives lifesaving $2.2 million drug infusion
Violet Fitzgerald, who is just 11 weeks old, has received an infusion of a gene therapy medication that costs $2.2 million for a single dose, which her family hopes will halt the potentially deadly condition she was born with.
World’s most expensive drug only hope for baby Violet
The world's most expensive medication, costing $2.2 million, is the only chance that 11-week-old Violet Fitzgerald has of survival.
