Young Jordan Trickett has raised more than $400 for a biliary atresia charity.
Jordan, 11, was diagnosed with biliary atresia when he was just seven weeks old at Miami Children’s Hospital. Biliary atresia is a rare, life-long and life-threatening childhood liver disease with no known cause and no cure.
He underwent a life saving surgery called a Kasai procedure on the same day he was diagnosed. The Kasai procedure surgically bypasses blocked liver ducts to prevent liver damage and is the preferred treatment for biliary atresia.
Since his operation, Jordan has fought numerous health setbacks, but is now strong and healthy.
When he read that the International Biliary Atresia Day was scheduled for 1 December, 2012, he decided to take part and raise funds for the charity organisation, Biliary Atresia Awareness and Research group.
His school, Montessori By The Sea, embraced the idea and offered him the opportunity to do a PowerPoint presentation for his classmates to explain to them about the disease and to collect funds for the school’s “dress down day” during which baby blue glow-in-the dark wrist bands were also handed out to elicit donations.
The young philanthropist sent the money he raised to the Biliary Atresia Awareness and Research group, which has publicly thanked him, putting his picture and his information about his fundraising efforts on its Facebook page, which has garnered nearly 150 Likes.